Usher News

The latest news from the Molly Watt Trust as we try to spread the word about inclusivity for all.

Seven ladies at an MWT get together, each smiling and looking towards the camera, two have their canes.

Empowering Voices: Sharing Experiences with Usher Syndrome

Sharing experiences and storytelling is a great way to learn about Usher Syndrome.  For those living with the condition sharing daily challenges and achievements is often very useful and a good way to communicate with the wider world.

We regularly ask those in our community to contribute and be a part of our efforts and raising awareness.
If you want us to share your journey, your experience, your thoughts please contact us

Dark haired lady wearing a blue denim top, she is looking directly at the camera.

Helen’s Diagnosis

My name is Helen Colson. I’m 32 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely

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Young lady wearing black gown and black hat standing on the grass looking at the camera with a smile on her face.

Usher to Usher

I hope you don’t mind but after researching usher’s syndrome and RP I came across your blog and I wanted to introduce myself. My name

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A girl with dark long hair smiling, wearing a light striped top.

The Evolution of Tech

Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed.  It remains a condition without a cure. There are variations in

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Hi ‘I am Claire’

Hi I’m Claire Cooper and I have Usher Syndrome type 2, I’ve been partially deaf since birth with 2 digital hearing aids but never considered

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A smiling lady with chestnut coloured hair and glasses looking at the camera.

Unacceptable Audiology

I have Usher Syndrome, I am deafblind and my condition is degenerative. The fact that it gets worse and my abilities change all the time

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