Map of US

The Map of Us was set up to connect us and born out of need. In the 17 years of our involvement with Usher Syndrome there has never been a realtime map of our community! ‘Usher is rare was always the line!’

Well here we are and our number continues to grow!


Person living with usher syndrome

(Hearts marked Anonymous are a child)

Organisation associated with usher syndrome

Put yourself on the map

Add an individual

Put an organisation on the map

Add an organisation