Usher News

The latest news from the Molly Watt Trust as we try to spread the word about inclusivity for all.

Empowering Voices: Sharing Experiences with Usher Syndrome

Sharing experiences and storytelling is a great way to learn about Usher Syndrome. For those living with the condition sharing daily challenges and achievements is often very useful and a good way to communicate with the wider world.

We regularly ask those in our community to contribute and be a part of our efforts and raising awareness.
If you want us to share your journey, your experience, your thoughts please contact us

Molly standing beside a notice saying 1 Infinite Loop, visitors. Molly is wearing a grey long cardigan, black jeans, striped top and black boots, she is holding her red and white cane.

San Fransisco Adventure

27 October 2016

San Francisco had been on my long list of places to visit and I was lucky enough to go on a girls only adventure with

Molly and her Mum, heads together both smiling and looking at the camera.

Life is a Rollercoaster!

29 June 2016

As part of my ‘rollercoaster ride’ I have experienced huge ups and downs over the years. A husband and four children comes with challenges but

Claire as she was making her jump from the plane, she is attached to her tandem guide.

Claire’s Skydive Challenge

29 June 2016

On June 26th 2015 I embarked on a Tandem Skydive with Molly for the Molly Watt Trust. The weeks leading up to it I tried not

Young lady with dark long hair looking at the camera.

ReSound Linx2 to ReSound 3D

6 June 2016

For the last two years I have raved about ReSound LiNX² smart hearing aids and rightly so, they literally changed my life. I would be

Jo, Colin, Molly and Guidedog Unis standing together smiling and looking at the camera.

In it Together – Walsall 2016

22 May 2016

Walsall 2016 ‘Hear no. See no, Techno’ Jo Milne, Colin Hetherington and Me. Once again we were blessed with a room full of people all

Picture of young lady wearing dark coat, a cream bobble hat and light blue boots, she is standing beside her black guidedog who is wearing her red and white chequered harness.

Applewatch and Children

19 April 2016

I recently received an email enquiry from the Mum of a 9 year old son living with Usher syndrome. I regularly receive email from

Applewatch Centre Stage

15 April 2016

AppleWatch and smart technology are brilliant for people with Usher Syndrome! I have Usher Syndrome, which means I was born deaf and in the last

A smiling young lady with long dark hair, looking at the camera, she is wearing a grey patterned dress.

Anum and Usher

12 April 2016

My name is Anum, I am 20 years old, soon to be 21. Some of you probably know that I have Usher Syndrome as we

A bald man wearing glasses and a dark top, he is looking at the camera.

Awesome Applewatch but hearing aids disappoint!

22 March 2016

I recently received an applewatch from The Molly Watt Trust, via their GlobalGiving project. I love gadgets. I have ushers syndrome type 3 which is

A little brown haired girl wearing blue and white gingham bikini, she is on a sandy beach with the sea in the background.

Down the loo or in the nettles!

16 March 2016

Down the loo or in the nettles at the end of the garden: from the age of 3 my top two destinations to hurlmy detested

An old green car in a field next to an old dirty white van.

C’est la vie!

28 February 2016

On February 24th 2004 aged 22, my life changed dramatically in one day. I went from being fully independent living life, being care free, I

Picture of a black and red cased hearing aid, literature about the ear.

Costs, hearing aids and Cochlear Implant

18 February 2016

We met a lovely lady from Northern Ireland at a Molly Watt Trust ‘In it Together’ event in Edinburgh in October 2015, she has been