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Well it’s the year of 2020 everyone! It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...
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This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...
Read more...We were truly horrified to hear of Molly's recent expereince at London's Euston Station and it must never happen again: I travelled from Maidenhead to London Euston to catch a train...
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My name is Helen Colson. I’m 29 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely deaf, Ushers Syndrome last year. It...
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Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to...
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Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue...
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Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed. It remains a condition without a cure. There are variations in level of deafness, in level of...
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It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant...
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Indeed back in the 19th Century it was Helen Keller who stated “DEAFNESS SEPERATES US FROM PEOPLE AND BLINDNESS SEPERATES US FROM THINGS”. Back then she was right, she lived...
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Today is ‘Rare Disease Day -2019’ So I decided on a blog about hearing aid technology that can and does enhance lives. This http://www.nciua.org.uk/latest-new/ was brought to my attention several weeks ago. ...
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