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Case Study 1

Our first case study (CS1) is Colin age 53 and living with Usher Syndrome Type 3 the rarest of the Usher types. Colin has worn hearing aids since he was 40 years old and is currently severely deaf and has been registered severely sight impaired (blind) for several years.

Colin was fitted with GN Hearing ReSound LiNX Quattro smart hearing aid on 16 November 2019.

ReSound GN Hearing aids

Thursday, 28 November 2019 18:23

Readiness for the ‘Big Day’ 

Written by  Colin
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The Molly Watt Trust with the support of GN Hearing and Hearing Clinic Glasgow was delighted to have arranged the fitting of Colin’s ReSound LiNX Quattro smart hearing aids in advance of his Wedding Day.  A little time for adjustment ready for one of the most special days of his life.

Colin:

November 1st, 2019 was without a doubt one of the biggest days of my life as Lyn and I finally got married. 

The one big thing I was always concerned about was that this was going to be a big and social event, min and Lyn’s big event, an environment I would very much struggle with in in the past.  Anybody living with Usher Syndrome will tell you being deaf and blind in this space is often so challenging many of us would choose to avoid some social rather than struggle to communicate and see so little you simply cannot enjoy it - self isolation.

I had felt a level of anxiety on the run up to the wedding but both Lyn (who is blind) and I took a great deal of time arranging things to be as ‘Usher/deafblind’ friendly as it could be. 

We had organised our wedding to be as inclusive as possible, having control meant we could control things really important to Lyn and I.  Often just little things but things that make a huge difference.  I was able to control the lighting, I could even dim the disco lighting.  We had appropriate lights throughout the venue so Lyn and I with our small amount of sight between us could make the very most of our day and that our guests would also be comfortable.  We made sure there was provision for our guide dogs and for our guest’s guide dogs. 

I wanted to see my beautiful bride and our guests, just like any other bride and groom we wanted to cherish every moment.

My other really big concern was my hearing, I had been really struggling with my standard NHS hearing aids.  I was very anxious I would not hear my marital vows and possibly make a fool of myself.  When you cannot see much and your hearing is terrible being on the spot isn’t somewhere you’d not specifically want to be so when the Molly Watt Trust approached me and discussed their project I jumped at being a part of it.  The offer came at the perfect time - I was excited.  I had heard so much about GN Hearing and their smart hearing aid range and couldn’t wait to be fitted.

Well I was elated, not only did I hear my wedding vows clearly I heard so much more.

When it came to the speeches I was able to hear all of them clearly in a large room full of friends and family, I could hear where the voices were coming from and exactly who they were.  After the speeches when we sat down to eat, even above the sound of guests chatting, plats and knives and forks clattering I could still hear certain voices and accents around the room.  This sort of thing I’m still marvelling over, just amazing.

When the music came on I could hear it clearly, with the appropriate lighting I could dance and feel safe and I could also hear Lyn speaking to me through the music. 

For the first time in years I could genuinely enjoy a sociable environment and feel completely included in conversation.

I was able to mingle with our guests and even though I couldn’t see them I could hear them, something previously I could only have dreamed of. 

As I look back on our big day I feel so emotional that it really was the day Lyn and I had dreamed of and that it was complimented and completed by a pair of ReSound LiNX Quattro smart hearing aids.  Life changing.

Thank you so much to Molly Watt Trust, ReSound GN Hearing and Hearing Clinic Glasgow.

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