Our first case study (CS1) is Colin age 53 and living with Usher Syndrome Type 3 the rarest of the Usher types. Colin has worn hearing aids since he was 40 years old and is currently severely deaf and has been registered severely sight impaired (blind) for several years.
Colin was fitted with GN Hearing ReSound LiNX Quattro smart hearing aid on 16 November 2019.
increase font size
To support the work of MWT please click on any of the Donate buttons below or alternately you may send a cheque made payable to Molly Watt Trust and sent to Queen Anne House, 25-27 Broadway, Maidenhead,Berkshire, SL6 1LY.
All donations and support are gratefully received.
Please complete this form if applicable so that we may claim an additional 25% in gift aid.
Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...
Read more...
Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...
Read more...
Well it’s the year of 2020 everyone! It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...
Read more...
This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...
Read more...We were truly horrified to hear of Molly's recent expereince at London's Euston Station and it must never happen again: I travelled from Maidenhead to London Euston to catch a train...
Read more...
My name is Helen Colson. I’m 29 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely deaf, Ushers Syndrome last year. It...
Read more...
Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to...
Read more...
Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue...
Read more...
Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed. It remains a condition without a cure. There are variations in level of deafness, in level of...
Read more...
It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant...
Read more...