A A A Accessibility A A A A

Case Study 1

Our first case study (CS1) is Colin age 53 and living with Usher Syndrome Type 3 the rarest of the Usher types. Colin has worn hearing aids since he was 40 years old and is currently severely deaf and has been registered severely sight impaired (blind) for several years.

Colin was fitted with GN Hearing ReSound LiNX Quattro smart hearing aid on 16 November 2019.

ReSound GN Hearing aids

Sunday, 20 October 2019 11:27

A little time to reflect

Written by  Colin
Rate this item
(9 votes)

Today I’m feeling a bit washed out it’s been an exciting emotional but most of all a life changing week. 

I decided to chill out and take the dogs up the big hill.  It’s about 4 miles through the woods and dams with stunning views. Today I found myself taking a lot longer than normal as it suddenly hit me that I could hear pitch perfect silence at the bottom of the hill, there was no muffled white noise or whistling, something that had become the norm with my standard NHS hearing aids, not even the constant irritation of wind whistling through my ears.  In that moment I realised just how difficult hearing had become with all those unwanted sounds.  That clear silence literally was golden.  As I walked on I could hear aeroplanes approaching the flight path into Glasgow airport some 5 miles away . The clarity that I could hear aeroplanes before I could possibly see then, I was blown away. 

As I began walking again I quickly realised I had a better connection with the dogs too, I could hear them even though I couldn’t see them as they enjoyed their free run. 

As I was walking I noticed I could also hear my heavy feet trudging in the mud, this brought a smile to my face . I continued to walk poking my cane step by step grinning. I took my finger off the pulse, a lapse in concentration as I engulfed myself in the joy of the sounds of the woods , it went from light to dark in the woods not a great thing with Usher Syndrome/Rp (Night blindness).  I found myself With 2 dogs running around and as I stepped forward in the dark I ended up knee deep in water in a ditch!  I didn’t even attempt to scramble out but took the time to listen to the sounds of the water running past my boots. It sounds stupid but it what such a joy.

As we approached the bottom of the hill in the dark silence I suddenly heard a lone bird singing.  I stood still for about 5 minutes listening to it’s glorious chorus, I had never heard any of these sounds!

Boy what a day you really don’t realise what you’re missing. 

Thank you so much to the Molly Watt Trust and GN Hearing

Read 1573 times

 

Recent Blogs

Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...

Read more...

A Decade of Progress

A Decade of Progress

Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...

Read more...

Ultimately we can all be winners

Ultimately we can all be winners

This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...

Read more...

Virgin Train #Fail

We were truly horrified to hear of Molly's recent expereince at London's Euston Station and it must never happen again:   I travelled from Maidenhead to London Euston to catch a train...

Read more...

Helen diagnosis 'I felt my world fel…

Helen diagnosis 'I felt my world fell apart'

My name is Helen Colson. I’m 29 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely deaf, Ushers Syndrome last year.  It...

Read more...

Olivia's Usher Life - Last few month…

Olivia's Usher Life - Last few months of emotions

Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to...

Read more...

Where did our journey with Usher Syn…

Where did our journey with Usher Syndrome begin?

Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue...

Read more...

The evolution changing Usher Syndrom…

The evolution changing Usher Syndrome

Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed.  It remains a condition without a cure. There are variations in level of deafness, in level of...

Read more...

Whispers in the Dark

Whispers in the Dark

It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant...

Read more...

GAAD - Not if but how!

GAAD - Not if but how!

Indeed back in the 19th Century it was Helen Keller who stated “DEAFNESS SEPERATES US FROM PEOPLE AND BLINDNESS SEPERATES US FROM THINGS”. Back then she was right, she lived...

Read more...