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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

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Hello everyone, hope you are all doing okay during these unusual times. Some of you may know me and some not, so let me introduce myself. My name is Olivia Morton, and I am 15 years old and I’m living with this rare genetic disease called Usher Syndrome. I was diagnosed…
Wednesday, 03 March 2021 11:45

My 1st year with Resound Linx Quattro - WOW!

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    I was chosen as part of a project run by Molly Watt Trust with the support and collaboration of GN Hearing and Sarah Vokes of Correct hearing in Nottingham.  In February 2020 I was assessed and fitted with Resound Linx Quattro smart hearing aids, the gift of sound.…
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Hi folks I hope you are all well and keeping your spirits up. I thought I’d write an update on my experience wearing Linx Quattro hearing aids from Gn Resound for just over a year. Donated by the Molly Watt Trust in collaboration with GN Hearing and The Hearing Clinic,…
Friday, 20 November 2020 14:31

The Colour Palette of Hearing - Resound One

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Ok so finally I can write my first Resound One review. On 3 September I was fitted with my new hearing aids.  For me it always takes a good few weeks for my brain to embrace new hearing aids. As many of you will know I have been on a…
Wednesday, 18 November 2020 12:50

Covid Challenges and Solutions #DoingItAnyway

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I was so excited about 2020, it was set to be another full year, lots of exciting projects, lots of learning, lots of educating, lots of travel, a new nephew and my own flat.  Instead it’s been a year of cancelled travel, a bit of furlough, lots of remote working…
Thursday, 21 May 2020 16:15

The Reality of Usher Syndrome

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Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of person, however today it felt very different!  Firstly I got up later than normal 10am which is not like…
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Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access to sound. For me going blind took precedent! I had retinitis pigmentosa and I had macular oedema.  My consultant…
Friday, 10 January 2020 15:10

A Decade of Progress

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Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that might provide hope for those living with progressive conditions such as mine.  As hard as it can feel there…
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