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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Thursday, 27 June 2019 15:26

Olivia's Usher Life - Last few months of emotions

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Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to tell you all and I can’t wait to tell you everything. I think this blog is going to be a…
Thursday, 27 June 2019 11:13

Where did our journey with Usher Syndrome begin?

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Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue all we were told is she had black spots in her retina it was nothing to worry about!! That she…
Tuesday, 25 June 2019 14:11

The evolution changing Usher Syndrome

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Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed.  It remains a condition without a cure. There are variations in level of deafness, in level of blindness, in chosen mode of communication, in chosen method of mobility aid(s). We all have daily challenges living with…
Sunday, 23 June 2019 19:32

Whispers in the Dark

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It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant. Having to feel your way through an unfamiliar room in the pitch black. Having to hold onto your mate as…
Thursday, 16 May 2019 07:02

GAAD - Not if but how!

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Indeed back in the 19th Century it was Helen Keller who stated “DEAFNESS SEPERATES US FROM PEOPLE AND BLINDNESS SEPERATES US FROM THINGS”. Back then she was right, she lived in a time where there was no assistive technology to help her live her life and having read about her…
Thursday, 28 February 2019 13:54

Equal access to sound for all

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Today is ‘Rare Disease Day -2019’ So I decided on a blog about hearing aid technology that can and does enhance lives.  This http://www.nciua.org.uk/latest-new/ was brought to my attention several weeks ago.  My first thought was FANTASTIC for those choosing cochlear implant but the more I thought about it and…
Friday, 26 October 2018 16:32

LiNXQuattro 'LiNX to Everything"

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I have to admit that as time goes by, wearing high tech smart hearing aids has become just a part of me.  I imagine this must be how natural hearing sounds, if that makes sense!  GN hearing’s assistive technology over the past 3 years has sort of become a part…
Friday, 11 May 2018 15:39

#GAAD 2018 - Exclusion to Inclusion

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I wanted to write something for GAAD (Global Accessibility Awareness Day) this year to take into account a lot of the work I have been doing over the last 3 years and how and why I do it. Being born deaf and living as a deaf person with NHS hearing…
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