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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

If you'd like to be a guest blogger please contact us.

 

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Wednesday, 16 December 2015 17:58

The Jekyll & Hyde of Usher Syndrome

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I had never heard of Usher Syndrome until I worked with a girl who has it.   If I’m honest I saw her come in and out with her guide dog and she appeared to be ok, never asked for help, seemed to cope as well as the rest of…
Sunday, 13 December 2015 21:01

Can Deafblind Access Wayfindr?

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An audible App or program for the blind, accessible to deafblind, using hearing aids? There was a time when accessing such a thing would have been impossible and in my lifetime too. However, in April this year I had the fortune to do an Usher Syndrome Awareness presentation to an…
Friday, 04 December 2015 13:59

"Access to Tweet, Tweet to Access"

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I was delighted to see that at last Facebook allows dynamic text for those of us who use iOS and rely on it. Finally those who had been isolated from family, friends and groups because of inaccessibility enabled. Thank you Facebook for listening and acting appropriately.   I still find…
Monday, 23 November 2015 19:28

A "Resounding" Success

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When I wrote my Applewatch blog back in April this year, I had no idea of the interest it would generate, nor the amazing people or companies it would lead me to. I felt so proud that my blog led to many people with Usher Syndrome, deafblind, blind or deaf…
Friday, 30 October 2015 19:36

Please, Please, Please Consider All Our Needs

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I was prompted to write a blog on reading this quote:  “For people without disabilities,technology makes life easier.  For people with disabilities technology makes things possible” (IBM training manual 1991). That quote was made 3 years before I was born and how true it is. My life would be so…
Friday, 16 October 2015 19:40

Edinburgh Social Event 3 October 2015

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Best Western Kings Manor Hotel, Edinburgh Saturday 3 October 2015 was a great success. It was brilliant to see old and new faces and a time to share some news and information of our work throughout the year. We were delighted to have a very detailed and useful presentation from…
Wednesday, 07 October 2015 14:18

Usher Syndrome - The Importance of Acceptance

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I have now realised after many years that always trying to fight Usher Syndrome certainly does not work. I don't know if it's a pride thing or that I am just perhaps so damned stubborn that it gets in the way of actually letting me try to live a normal…
Friday, 25 September 2015 16:17

Usher Syndrome Awareness

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Usher Awareness Day Sept 19th 2015 Dominique Sturz, Usher Forum Austria My name is Dominique and I am the mother of a 19 year old daughter with Usher Syndrome, she is a law student. My husband and I also have a 23 year old daughter, she is a medical student…
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