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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Monday, 23 November 2015 19:28

A "Resounding" Success

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When I wrote my Applewatch blog back in April this year, I had no idea of the interest it would generate, nor the amazing people or companies it would lead me to. I felt so proud that my blog led to many people with Usher Syndrome, deafblind, blind or deaf…
Friday, 30 October 2015 19:36

Please, Please, Please Consider All Our Needs

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I was prompted to write a blog on reading this quote:  “For people without disabilities,technology makes life easier.  For people with disabilities technology makes things possible” (IBM training manual 1991). That quote was made 3 years before I was born and how true it is. My life would be so…
Friday, 16 October 2015 19:40

Edinburgh Social Event 3 October 2015

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Best Western Kings Manor Hotel, Edinburgh Saturday 3 October 2015 was a great success. It was brilliant to see old and new faces and a time to share some news and information of our work throughout the year. We were delighted to have a very detailed and useful presentation from…
Wednesday, 07 October 2015 14:18

Usher Syndrome - The Importance of Acceptance

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I have now realised after many years that always trying to fight Usher Syndrome certainly does not work. I don't know if it's a pride thing or that I am just perhaps so damned stubborn that it gets in the way of actually letting me try to live a normal…
Friday, 25 September 2015 16:17

Usher Syndrome Awareness

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Usher Awareness Day Sept 19th 2015 Dominique Sturz, Usher Forum Austria My name is Dominique and I am the mother of a 19 year old daughter with Usher Syndrome, she is a law student. My husband and I also have a 23 year old daughter, she is a medical student…
Friday, 25 September 2015 16:14

Trials and Tribulations of an Usher Mum and Dad

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As some of you may know, Jake our sixteen year old son was diagnosed with Ushers Type 2a 3 years ago, at the time Trev and I thought our world had ended and wondered how Jake would cope, he was a sensitive 13 year old, but we needn't have worried.…
Thursday, 24 September 2015 17:01

I can no longer hear with my eyes - Lets Talk Hearing Aids

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I was recently talking about cochlear implant and was told the reason those of ANY age with Usher Syndrome (deafblind) that are profoundly deaf and wanting cochlear implant and who pass the NHS assessment will qualify for bilateral implants, however for those just deaf only children are considered for bilateral…
Saturday, 19 September 2015 12:51

We Own The Equinox 19 September 2015

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Our sincere thanks go to Mark Dunning and his team at the Usher Coalition for their hard work in putting Usher Syndrome on the calendar thus resulting in so many deciding to embrace the opportunity to raise awareness of Usher Syndrome in one way or another, it's been fantastic. Our…
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