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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Tuesday, 02 February 2016 15:05

Applewatch Accessibility and Connectivity

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To quickly introduce myself, am Colin and I have Usher Syndrome type 3, the rarest of the Usher types.   I recently received a letter to collect a package from the post office, pretty handy for me as its right beside the train station and I was on my way…
Sunday, 31 January 2016 16:40

A Simple Tap or Touch can Mean so Much

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Something I am often asked at my presentations is what is the best and most acceptable way to approach or get the attention of a deafblind person. My answer would be ‘touch,’ however so many seem uncomfortable with this! I have noticed here in the UK most people are not…
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I recently read a piece virtually comparing hearing aids with earBuds / EarPods and hearing aids with glasses! I read the piece several times and still thought it strange.  I'm 21 years old and have worn hearing aids since 18 months old.  Even in my time hearing aids have come…
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Recently I was invited to appear at the Sense Awards at Kings Cross London.  I had been nominated by friends and colleagues from the Usher Syndrome and RP Community, I have Usher Syndrome type 3. I was absolutely overwhelmed that people thought enough of me to nominate me .  As…
Sunday, 20 December 2015 19:39

Josh Dealing with Usher Syndrome Type 3

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Josh’ Blog for The Molly Watt Trust Hi, I’m Josh. I’m 22 years old and I have Usher Syndrome type 3. I was born with normal hearing and vision, unlike most other people with Usher Syndrome who are born with some form of hearing loss.  When I was 5 years…
Wednesday, 16 December 2015 17:58

The Jekyll & Hyde of Usher Syndrome

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I had never heard of Usher Syndrome until I worked with a girl who has it.   If I’m honest I saw her come in and out with her guide dog and she appeared to be ok, never asked for help, seemed to cope as well as the rest of…
Sunday, 13 December 2015 21:01

Can Deafblind Access Wayfindr?

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An audible App or program for the blind, accessible to deafblind, using hearing aids? There was a time when accessing such a thing would have been impossible and in my lifetime too. However, in April this year I had the fortune to do an Usher Syndrome Awareness presentation to an…
Friday, 04 December 2015 13:59

"Access to Tweet, Tweet to Access"

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I was delighted to see that at last Facebook allows dynamic text for those of us who use iOS and rely on it. Finally those who had been isolated from family, friends and groups because of inaccessibility enabled. Thank you Facebook for listening and acting appropriately.   I still find…
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