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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Saturday, 28 January 2017 19:13

Disjointed Care or Digital Data?

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I was delighted to be invited to meet with Digital.Health London to discuss a variety of things relating to my journey with the NHS and the various services. It certainly got me thinking and discussing in depth my journey of care with my Mum, the more we discussed the more…
Friday, 06 January 2017 11:32

Bali - Sound Sensations

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At the end of my work and networking trip to the other side of the world, Mum and I decided on a a trip to the beautiful island of Bali to spend the last 10 days relaxing. Arriving in Bali was surreal, it was dark outside, I hate arriving anywhere…
Friday, 09 December 2016 18:57

Usher Syndrome / Christmas Challenges

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Hello, my name is Josh Parker and I have Usher Syndrome type 3. Most of you reading this probably already have an idea what Usher Syndrome is, so I’ll keep the next bit short to get to the main point of this blog. I wrote a more in depth blog…
Wednesday, 07 December 2016 07:23

A toolkit to enable deafblind to access the world

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San Francisco in November was an amazing experience, not just because I got to speak in Silicon Valley to some of the very top people in digital at Qcon I also got to re-visit my friends in the Accessibility Team at Apple Cupertino and I got to learn so much…
Monday, 05 December 2016 17:54

Singapore Airlines - Never again

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I blogged about my not just poor but disgraceful treatment by Singapore Airline cabin staff on 13 November during my flight, Heathrow to Singapore.  I very unpleasant start to travel I had looked forward to for months. The experience was so bad I put in a formal complaint to the…
Sunday, 20 November 2016 08:45

Singapore Airlines a Very Unpleasant Experience!

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13th November, the start of my adventure to the other side of the world.  It had been just two days since Mum and I had come off a plane from San Fransisco (that's another blog!) Already we were heading off to Singapore before Perth, Australia where I was a keynote…
Thursday, 03 November 2016 19:19

Deafness makes you more blind

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My name is Colin Hetherington and I suffer with Usher Syndrome which is retinitis pigmentosa (blindness) which gives me all sorts of daily troubles from glare tonight blindness, headaches flashing interference and tunnel vision all this coupled with hearing loss . My current state of affairs are about 3 degrees of…
Monday, 03 October 2016 21:04

Facebook - Anti Social Media!

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Dear Facebook I am a 22 year old who struggles with accessibility. I am registered deafblind, however, I was not born deafblind but deaf.  What that means, to you, is that I was brought up a very visual child and like most deaf people I could lipread, observe body language…
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