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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Friday, 11 August 2017 09:31

September's Skydive/ Now November Skydive

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Due to mechanical problems with the aircraft on Sunday 3 September 2017 we have had to re-arrange this fundraiser.  New date for this event iis Sunday 26 November 2017 We are delighted to have a team of fundraisers for ‘September’s November Skydive’. The team are taking this leap to support…
Tuesday, 01 August 2017 11:33

Maidenhead Charity Ball 2017

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I was fortunate to be introduced to local couple Diane and Laurence Armstrong at a Christmas party in 2016. We quickly struck up conversation about both their's and my charity work. Diane and Laurence have hosted numerous charity balls over the years and raised thousands and thousands of pounds for…
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When I first got my applewatch from the molly watt trust I was really excited, being profoundly deaf and registered SSI with usher syndrome type 1.  I hoped the watch would enhance my life tremendously.Setting the watch up was easy, even with my limited vision and it connected to my…
Tuesday, 11 July 2017 16:42

Different, Unique, Priceless

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Why don't people see the potential in different or in disabled? It is absolutely down to awareness, understanding and attitude in my opinion. As a little girl my parents made sure I mixed with hearing and deaf children.  As a result seeing people with hearing aids or cochlear implants was…
Wednesday, 21 June 2017 09:48

Emotion and Music to my Ears

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I have had some additional personal challenges recently with the reality that my first trusty and gorgeous guide dog Unis is retiring early and that I will continue my journey with the beautiful young Isabella. Isabella will never replace Unis, just take me on as her big challenge! It is…
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For the last two years I have raved about ReSound LiNX² smart hearing aids and rightly so, they literally changed my life. I would be lying if I didn't say "REALLY" when I initially read about ReSound LiNX3D, however, I absolutely wanted to try them. Anybody familiar with hearing aids…
Monday, 08 May 2017 20:19

Applewatch for kids

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I recently received an email enquiry from the Mum of a 9 year old son living with Usher syndrome.   I regularly receive email from others living with the condition I’m living with, however, this particular enquiry was interesting as it made me really think about exactly how useful an…
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Since my young daughter was diagnosed with Usher syndrome 5 years ago I had never met another child or family living with Usher syndrome here in the UK. I'd been lucky enough to travel to the Usher Syndrome Coalition's family conference in America back in 2014 and knew how beneficial it could be…
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