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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Monday, 27 November 2017 15:48

Charlotte's Applewatch

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I was aged 14 when I was told I had Ushers Syndrome Type 2. I was devastated and my dreams for the future were gone in a single moment. Being faced with the bleak reality of slowly losing your sight would be hard for anyone, let alone a young teenager…
Wednesday, 04 October 2017 12:41

Usher Awareness Weekend and Workshop 2017

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Well it finally came, a date in the diary both Lyn and I had been looking forward to for some time, Amy Winehouse on the 15th of September and 16th September Usher Syndrome Awareness Day.  For many years I would say ushers was defiantly not something I’d want to celebrate,…
Thursday, 21 September 2017 14:58

My "Blind Date with Ushers

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On Saturday 16 September 2017, Usher Syndrome Awareness Day,  I was very humbled to join in on an accessibility workshop hosted by Molly Watt from Molly Watt Trust and Chris Bush from SIGMA, held at the Thames Riviera Hotel in Maidenhead Berkshire. It really was a ‘blind date’ for me…
Wednesday, 13 September 2017 15:43

Applewatch, I won't leave home without it

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Hi Molly Watt Trust I want to thank you for funding my applewatch. I had so much catching up to do through the school summer holidays including  training with my new guide dog Twinkle, along with keeping my two children tkeep occupied. Now I’ve caught up I can finally write…
Friday, 11 August 2017 09:31

September's Skydive/ Now November Skydive

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Due to mechanical problems with the aircraft on Sunday 3 September 2017 we have had to re-arrange this fundraiser.  New date for this event iis Sunday 26 November 2017 We are delighted to have a team of fundraisers for ‘September’s November Skydive’. The team are taking this leap to support…
Tuesday, 01 August 2017 11:33

Maidenhead Charity Ball 2017

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I was fortunate to be introduced to local couple Diane and Laurence Armstrong at a Christmas party in 2016. We quickly struck up conversation about both their's and my charity work. Diane and Laurence have hosted numerous charity balls over the years and raised thousands and thousands of pounds for…
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When I first got my applewatch from the molly watt trust I was really excited, being profoundly deaf and registered SSI with usher syndrome type 1.  I hoped the watch would enhance my life tremendously.Setting the watch up was easy, even with my limited vision and it connected to my…
Tuesday, 11 July 2017 16:42

Different, Unique, Priceless

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Why don't people see the potential in different or in disabled? It is absolutely down to awareness, understanding and attitude in my opinion. As a little girl my parents made sure I mixed with hearing and deaf children.  As a result seeing people with hearing aids or cochlear implants was…
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