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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Tuesday, 30 September 2014 01:00

My Sense Presentation - First As Sense Ambassador

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I was just 12 when I was diagnosed with usher syndrome and I have learnt so much, but of all the things I have learnt I would say the most important have been Support and Friendship. I think I had to experience bad support before I really knew what good…
Saturday, 27 September 2014 01:00

Testing Times at University

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Probably more so because mum and dad are in another country with next-to-no wifi, meaning I can't contact them at all- nor would I want to hassle them while they're enjoying themselves in complete blissful Cuba!My parents have done so much for us 4 children, and I know Dad did…
Wednesday, 17 September 2014 01:00

University and Me

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Sunday 14th September 2014, is a day I will never forget.I'd always describe myself as too sensitive, and this day proved it on every level.Moving from home, the place I'd lived all my life, in a small town with my parents and brothers and sister.Even when puberty came, when friends…
Wednesday, 27 August 2014 01:00

Flight for Sight Interview with Mike Walsh

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I was recently interviewed by Mike Walsh of Flight for Sight after we met at Harvard. You can read the full interview at the Flight for Sight website.
Wednesday, 23 July 2014 01:00

Usher Symposium - Harvard Medical School

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I was lucky to meet Mark, Julia, Bella and Jack Dunning a few years ago in Boston as a result of my mum finding the Usher Coalition online. Networking has been a godsend to my family and I as we have managed to reach out to others living with usher…
Monday, 23 June 2014 01:00

House of Commons Presentation – 23 June 2014

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I was invited to speak at The House of Commons as a result of my previous work raising awareness of Usher Syndrome the condition that first took away my hearing followed by my sight.I should say that whilst I am not a big fan of Usher Syndrome I have learnt…
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