A A A Accessibility A A A A

Blog

The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

If you'd like to be a guest blogger please contact us.

 

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Sunday, 26 October 2014 01:00

Diagnosis: Usher Syndrome

Written by
Rate this item
(5 votes)
“Jillian, can you see in the dark?” “Oh.  Are you supposed to?” This was my response to my eye doctor at a routine checkup in high school.  It was the summer, I just turned 17 and was going in grade 11.  My older sister Michelle had complained to our eye…
Friday, 24 October 2014 01:00

Hi "I am Claire"

Written by
Rate this item
(2 votes)
Hi I'm Claire Cooper and I have Usher Syndrome type 2, I've been partially deaf since birth with 2 digital hearing aids but never considered myself deaf as I've always been oral and never needed BSL. I had help where needed throughout school and college.    When I left college…
Friday, 24 October 2014 01:00

Me, My Wife Claire and Usher Syndrome

Written by
Rate this item
(1 Vote)
When my wife and I discovered that she had Usher Syndrome, my first thoughts were confusion, what was Usher Syndrome, what does it mean and why has she got it? It felt so cruel hearing all this that we both broke down neither of us knew what to say or…
Rate this item
(3 votes)
I've visited Boyne Hill Infant and Nursery School before and was delighted to return to talk to the children about Frog, Froggy and Froggit my first children's book, tackling bullying. I have been the victim of bullying in the past, simply because I'm different, I'm deafblind but one of my…
Wednesday, 22 October 2014 01:00

My Usher Journey to date, in short!

Written by
Rate this item
(4 votes)
Valentines Day 1996 was the day everything really changed. A very lovely man with the kindest face and sensitive nature had sat on the bed and told us our beautiful daughter had sensorineural hearing loss, it was looking like a severe hearing loss and she'd need hearing aids all her…
Wednesday, 22 October 2014 01:00

Blind Man's Bluff or Just Bluff

Written by
Rate this item
(3 votes)
I had been playing with the demons in my head for a long time about acceptance of going blind especially the battle of using a white cane and I'm now sad to say the demons won for a long time. I'd started to use my cane reluctantly in my home…
Rate this item
(1 Vote)
St Mary's School Henley Molly’s talk to the school children at St Mary’s was so positive and inspiring. She encouraged them to always look for a positive in difficult situations. The children were completely fascinated by the very patient and obedient Unis and lots of questions asked whether she could…
Tuesday, 07 October 2014 01:00

The Bradley Timepiece - My Thoughts and Opinions

Written by
Rate this item
(8 votes)
I am 20 years old and I have Usher Syndrome (deafblind), I am severely deaf and am registered severely sight impaired (legally blind). What I see is like looking through a straw with my right eye and that is in good light, sadly my left eye is now just a blur.…
Page 18 of 19