A A A Accessibility A A A A

Blog

The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

If you'd like to be a guest blogger please contact us.

 

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Friday, 07 November 2014 00:00

The Day We Thought Our World Had Ended

Written by
Rate this item
(2 votes)
We are Jakes parents and this is our story.After a routine eye test that resulted in 6 months of appointments and tests (and the dreaded googling to find out what our son could have) the day arrived for us to get Jakes results at Grimsby Hospital, the date was 12…
Thursday, 06 November 2014 00:00

Our Journey - The Other Half

Written by
Rate this item
(10 votes)
Our Journey – The Other Half  This is quite a long story so be warned there is a bit to read here! Apologise to those who find staring at a screen for long hard but I just needed to get everything off my chest. I am Dan and I'm 21…
Tuesday, 04 November 2014 00:00

Coming Out

Written by
Rate this item
(11 votes)
Coming Out It's always interesting to read how people with hidden disabilities tackle the whole "Coming Out" procedure. For me it was a procedure.  There was nothing natural about it. Having been born deaf that had never really been an issue in fact while I was young my hearing aids…
Monday, 03 November 2014 00:00

Glendalough Trail - 1 November 2014

Written by
Rate this item
(10 votes)
Well, here I am with some amazing friends and family( I'm the short one with red hair!!) getting ready to take part in my very first charity event here in Ireland to raise funds for the Fighting Blindness.ie. It was an amazing but extremely tough challenge in the Glendalough Valley in…
Thursday, 30 October 2014 00:00

Molly and Me

Written by
Rate this item
(9 votes)
Molly and Me When Dan first told us he had a girlfriend I had the usual questions where’s she from, how old, where did you meet etc. He answered all of these and more as he explained to us how Molly was deaf blind and had a guide dog Unis.…
Tuesday, 28 October 2014 00:00

Tales of an Usher Syndrome Partner - Brian's Story

Written by
Rate this item
(6 votes)
  The Beginning As anyone who suffers with Ushers will know it is a trying disease which has a profound effect on not only the sufferer but those around them. All too often this is the frightened parents coping with the prospect of watching the child they love struggling to…
Sunday, 26 October 2014 01:00

Molly's Arrival in Our Family

Written by
Rate this item
(7 votes)
Over a year ago Dan, my son phoned to say he was going out with Molly, he then explained that she has Usher Syndrome. I had never heard of Usher Syndrome so decided to look it up and learn what it was. Looking back to that moment the information the…
Sunday, 26 October 2014 01:00

Jack and Usher

Written by
Rate this item
(8 votes)
My lovely son Jack has usher type 2. Way back when he was small we were concerned about his hearing. He seemed to fail all the hearing tests but the health visitors didn't action anything. it wasn't until we moved to Germany at we finally got a diagnosis that Jack…
Page 17 of 19