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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Thursday, 13 November 2014 00:00

Lets Talk Usher

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I'm Jo from Newcastle, I'm 40 years old and I was born profoundly deaf.  I had my 'eyes' and I used them for lipreading, scanning the world around me...  & being deaf was just who I was. We, as deaf people, treasure our eyes so it was absolutely heartbreaking to…
Wednesday, 12 November 2014 00:00

Partially Deaf, Partially Sighted, Totally Usher!

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My name is Fabrizio, I have Ushers and I am 35 years old. Or to put it another way, I am 18 with 17 years worth of experience! Like many Ushers I was born deaf and again like many that is all I thought it was. I did speech therapy,…
Tuesday, 11 November 2014 00:00

What is Usher Syndrome to Me?

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What does Ushers Syndrome mean? That was the very question I had asked myself when the doctors told me I had lost some of my eyesight and that I would very slowly continue to lose more. I didn't think they were telling the truth at first. How can you live…
Monday, 10 November 2014 00:00

Anum and Usher

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My name is Anum, I am 20 years old, soon to be 21. Some of you probably know that I have Usher Syndrome as we went to the same school. Where can I start? I was born in Africa, Kenya, some of you couldn't believe that I was born there…
Sunday, 09 November 2014 00:00

The Day My Dreams Were Shattered

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  Hi. My name is Andi Nicole Horstkotte. I have Usher Type 2a. I was first diagnosed in 2012 when I was 30 years old. I was a brand new mama of a 7 month old boy and a photographer who had huge plans in that field of work. It…
Sunday, 09 November 2014 00:00

Learning From Each Other

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  Usher Syndrome is a rare genetic disorder caused by a mutation in any one of 10 or more genes resulting in a combination of hearing loss and visual impairment, and is a leading cause of deafblindness. Usher Syndrome is incurable at present.    That is what you get when…
Sunday, 09 November 2014 00:00

Young and Living with Usher Syndrome

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Hey my name is Jodie, and I am any normal eighteen year old except having to cope with this cruel condition too!So here’s my story.. I had no clue what RP or Usher syndrome was until I joined secondary school, and had a friend in my year who was diagnosed…
Sunday, 09 November 2014 00:00

Dad's First Blog

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Well it's high time I tried to put down how I feel about Molly Jane Watt. I wear the badge with pride which says I've unconditional love for all of our children. Harry was born 26 years ago. Life changed very much once we became parents. Start of unconditional love.…
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