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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

If you'd like to be a guest blogger please contact us.

 

"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Thursday, 01 January 2015 00:00

Let's Get it Straight - A Mother's rant

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What is Multi Sensory Impairment? "Persons are regarded as deafblind if they have a severe degree of combined visual and auditory impairment resulting in problems of communication, information and mobility". One severe impairment e.g. severe hearing loss, accompanied by partial sight or moderate sight loss still constitutes deafblindness. The reason…
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Born profoundly deaf. 78 db and 83 db.  . ( 1948) Speech therapy started 1951. Had to be mainstreamed in kindergarten cause I was imitating the kids in a local deaf school. Absolutely no ASL anywhere.  Hearing aid ( body aid)  in 1st grade. Two BTE in 3rd grade.  Short…
Tuesday, 02 December 2014 00:00

Down the Loo or in the Nettles!

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Down the loo or in the nettles at the end of the garden: from the age of 3 my top two destinations to hurlmy detested hearing aids.  Painfully shy, diagnosed profoundly deaf and devoid of much speech, I took every opportunity in venting my fury at having to wear such…
Thursday, 27 November 2014 00:00

When Denial Becomes Reality

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Retinitis Pigmentosa (RP) has always been something that I've denied but this year as I turned 39 it became clear I couldn't deny it anymore. I was 7 years old when the news came that there was RP in my family.  My sister was the first of us to be…
Monday, 24 November 2014 00:00

Falling Into The Darkness

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This was another day in my life when Ushers Syndrome had well and truly won. I’d had my shop for three years after struggling with the demons in my head after taking my redundancy. I’d started a shop selling wallpapers and soft furnishings, I’d had a huge build up of…
Monday, 24 November 2014 00:00

Usher Blog From A Dutchie

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Hello! My name is Rick Brouwer, I am 49 years old and I live in Vlaardingen; a city near Rotterdam in The Netherlands. In the foto (left) you can see me running with a buddy. Yeah, that is also possible even when you have USher Syndrome!  On 15 November at…
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I guess you could always say I was unique from the time I was born.  My mom had complications from the start of her labor with me, her water broke but instead of coming out it went inside and essentially I was drowning in the womb!  I survived, of course,…
Wednesday, 19 November 2014 00:00

The Christmas When Life Changed Forever

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"Mum I can't see the whiteboard at school properly" Me: "Are you sitting close enough to the board?" "I always sit near the board and the teacher, always have to  otherwise I cannot lipread and miss out in class". Me: "I think you need an eye test, maybe you need…
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