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The place to share your thoughts and experiences. You may not realise it but just by being you and putting pen to paper you can help others.

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"Be who you are and say what you feel because those who mind don't matter and those who matter don't mind"

Dr Seuss

 

Friday, 29 May 2015 13:57

Being born with Usher Syndrome - GET it RIGHT

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I was born with Usher Syndrome in 1960, I'm born Deafblind but it wasn't properly diagnosed until I was 28. I had hearing aids from age 9, I was clumsy, I was going blind even then and I was told I was slow as I didn't speak very much and…
Sunday, 17 May 2015 16:13

Dear Tech, Please keep listening

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  Firstly I'd like to congratulate my beautiful, inspirational daughter on her recent blog http://www.mollywatt.com/blog/entry/my-apple-watch-after-5-days two weeks on over 193k hits and growing which means fantastic awareness of Usher Syndrome and particularly so in the world of technology. Molly has been taken aback by the interest in her blog which…
Friday, 01 May 2015 13:54

Awesome Usher Art at 8 Years Old

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Christian is an older brother to 2 sisters Georgia 6 and Hannah 4. We live on the Gold Coast in Australia. Both Christian, 8 and his sister Georgia whom is 6 are diagnosed with Usher Syndrome Type 1B. There certainly have been many extra unexpected challenges as parents over the…
Friday, 01 May 2015 13:41

My Apple Watch after 5 days!

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Having known about the Apple Watch for some time and knowing lots of my friends were planning to buy one, I was sceptical as my needs are quite different to that of those of the sighted and hearing.  I have to rely on specific accessible features. However, I was curious…
Thursday, 23 April 2015 20:00

See Me, Hear Me

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The sun would shine we'd go out to play Ride our bikes or play on swings We really could do wonderful things Run and play, just play all day Now when the sun comes out to play I must hide my eyes away The glare is painful it makes my…
Saturday, 28 February 2015 00:00

Success at the IBSA World Judo Championship

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As most of you will be aware I am a judo player and represent Great Britain. I also have type 2 Ushers! Last weekend (21-22 Feb) I attended the IBSA World Judo Championships in Eger, Hungary, along with 5 team mates. The competition is a qualifying event for Rio so…
Thursday, 08 January 2015 00:00

Job Interviews - My Access to Work

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I always wanted to work, I'd never considered that getting something part time around my studies would be an issue because "I know my own capabilities" clearly few others understood or wanted to understand, at least that's how it felt. Both my brothers had part time jobs in local supermarkets…
Wednesday, 07 January 2015 00:00

Let’s Talk Discrimination in the Workplace

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I work at a job I absolutely love and adore.   I love all of my co-workers, I love the people, I love the ‘perks’ and just what I do in general.  I have been at this organization for 7 years and have had 3 bosses and 1 “filler boss” (maternity…
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