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Saturday, 19 September 2015 12:51

We Own The Equinox 19 September 2015

Written by  Jane Watt
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Our sincere thanks go to Mark Dunning and his team at the Usher Coalition for their hard work in putting Usher Syndrome on the calendar thus resulting in so many deciding to embrace the opportunity to raise awareness of Usher Syndrome in one way or another, it's been fantastic.

Our own campaign #Ushlookslikethis has been run alongside "Own The Equinox” #USHEQX and has been a huge success.

We would like to thank each and every person who provided a selfie, photo or quote, who posted, tweeted, retweeted or favourited our posts all over social media in our attempt to raise awareness of Usher Syndrome in such a positive way and to include as many of the Usher community, their friends and family as possible.  

It has been fantastic seeing so many great pictures from all around the world, also to see the many other Usher Syndrome Awareness Campaigns taking place.

It is your pictures and quotes that have made our campaign work and of course the irony that #ushlookslikethis doesn't look like anything so cruel is this hidden condition.

The Usher Syndrome Awareness drive this past few weeks has given lots the confidence to come forward and to be  part of the ever growing community and for them in their own way to not feel isolated or alone and to have a voice.

We have had a record amount of contact from people wanting to introduce themselves and in one way or another be a part of raising awareness of this cruel condition.

It has been amazing watching so many involved in their own awareness campaigns which will definitely have raised the profile of Usher Syndrome.

To see that our handwork has been recognised online has made the campaign a real success:

http://www.disabled-world.com/disability/awareness/usher.php

It is fair to say #WeOwnIt

The primary objective of The Molly Watt Trust is to raise awareness of Usher Syndrome something we do all year round and something we will continue to do along with offering support, fundraising for small items of life enhancing equipment and to work alongside other larger charities.

There remains much to do.

Once again a huge thank you to all who have taken this opportunity of being a part of this worldwide awareness drive we are quite sure that as a result of the hard work by so many that there will be many many more people who will if nothing else have heard of Usher Syndrome which is fantastic.

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