The sun would shine we'd go out to play
Ride our bikes or play on swings
We really could do wonderful things
Run and play, just play all day
Now when the sun comes out to play
I must hide my eyes away
The glare is painful it makes my eyes weep
I hide behind dark glasses as if to sleep
My eyes are open but little can I see
Usher Syndrome, Deafblind is me
Hearing is a challenge but hearing aids fab
Seeing more difficult without Unis my lab
Life is different, challenging and tough
It's all about awareness, there isn't enough
My aim is to educate to make people aware
My Usher Syndrome challenges I'm going to share
If you are interested and would like me to inspire
Invite me to talk, go on I dare you to enquire
