On Saturday 16 September 2017, Usher Syndrome Awareness Day, I was very humbled to join in on an accessibility workshop hosted by Molly Watt from Molly Watt Trust and Chris Bush from SIGMA, held at the Thames Riviera Hotel in Maidenhead Berkshire. It really was a ‘blind date’ for me as I had only recently met Molly and prior to meeting her I had no idea what Usher Syndrome was. Usher Syndrome is very much an invisible condition, I was pleasantly surprised by a room filled with over 30 people that had travelled from as far as Scotland and Leeds all making their introductions and it really wasn’t until I saw the flurry of furry hounds with their High Vis harnesses on that I would have noticed anything different about this group of guests at the hotel.
On meeting Molly for the first time in Starbucks, on the surface, there wasn’t anything about her that alerted me to a condition of almost total blindness and deafness, until I spotted ‘Bella - the wonder dog’ sitting on the floor beside her wearing the High Vis paraphernalia. Usher Syndrome is a condition which affects both hearing and vision with the main symptoms being hearing loss and an eye disorder called retinitis pigmentosa or RP and as a vibrant and energetic mainstream millennial, Molly has not allowed her condition to stifle her modern day way of life. Although she is able to communicate using sign language Molly prefers to converse orally, (and boy can she talk for England) as well as maintain an active and strong presence across social media and on top of all that a whizz when it comes to state of the art digital technology - she is even able to maintain her own Digital Hearing Aids from an App on her iPhone reducing those nightmarish visits to the audiologist. A truly model citizen for the connected home industry.
Being an active millennial, Molly has also ensured that (aside from fashion) she is up to date with modern technology and has even managed to find her way into some high profile manufacturers who are developing state of the art technology including some for the Deafblind community. I guess it’s not without doubt that together with her determination Molly has been fortunate to have been selected as a model ‘guinea pig’ for some of this really cool and expensive kit, including #Applewatch, #iPhone, #ReSound Digital Hearing Aids #LiNX3D, #Ring Door Bell, #Philips Hue Lighting etc.
Molly had wanted to be a primary school, but was let down by the system, her university failing to provide access to her course, she therefore made the decision to move into the field of accessibility and enablement.
Molly is comfortable standing in the front of a room and captivating her audience, not to mention she has a great sense of humour too. This confidence and after writing a blog about how the applewatch transformed her life that went viral, also afforded her the opportunity of being invited to Apple HQ in Cupertino twice to provide her insight into the world of the deafblind and the needs of those living with Usher Syndrome along with how she utilises her #AppleWatch to communicate and navigate safely through society on a daily basis as well as in her home & family life - mum keeps a close ‘watch’ over her through technology.
Over the last decade, technology, smartphones, tablets and apps in particular have in many ways changed the way people live their lives on a daily basis and even made the world a smaller place. For many though, the arrival of this emerging technology can be very daunting, that is until you understand the benefits of how to extract the best use out of it to your advantage, regardless of abilities, everyone uses their devices in a different and personal manner. Who better to demonstrate some key advantages of these products, highlighting the important things as well as some useful tips too, than Molly herself. Impressed at how these products have impacted her way of living and with her tenacious entrepreneurial spirit, she took the initiative of organising a hands on accessibility and usability workshop in order to share her experiences with other members of the Usher community so that they too can enjoy the benefits of exploring these new arrivals.
Commanding the attention of an audience of around 30 (and their canine partners) is no mean feat for any speaker, however Molly and Chris managed this with ease and the audience soon became engrossed with the content and couldn’t wait to get hands on with exploring their own devices.
Not having previously had the need to explore the accessibility features on my mobile phone, I was suitably impressed by some of the tips that Molly and Chris shared with her group (Screen Reader vs Speak Screen, voiceover, inverting colours, zoom/zoom region, swiping with two or three fingers, double and triple tapping the home button -who knew all these options were available etc) that even I myself, a sighted and hearing individual have adapted to using some of these techniques to make my access that much more comfortable for myself including the ‘show controller’, zoom window and nightmode on twitter now that I have reached the age where I have to rely on reading glasses to see anything on my screens.
About me:- Passionate about the Digital Landscape and emerging assistive technology that is taking the connected smart home and city by storm, it is through my profession in proximity mobile marketing and my basic understanding of the Deaf community that I have identified a unique and niche new form of digital communication using a combination of this emerging technology and a mobile application as part of a #SmartCity Infrastructure that will transform the lives of millions of individuals offering them a more independent and inclusive way of living. I have started a project to develop this revolutionary new digital communication channel dedicated (but not exclusive) to the Deaf, Hard of Hearing and Sight Loss community and it was during my research into this project that Molly and I connected. In my experience of proximity mobile marketing where creative agencies are continuously looking at emerging tech and innovative ways in which to engage brands with their audiences in the physical world there is a lot that they can learn from people who have restrictions in life with how to overcome challenges.
I would like to leave you with this quote - Employees with disabilities drive innovation. Disability creates a constraint, and embracing constraints spurs inventive solutions - Haben Girma and please do consider that Molly-Watt-Trust is an independent Charity - Molly Watt Trust, registered UK charity 1154853 and would benefit greatly via any donations, please be generous.
I would like to take this opportunity to thank Molly, Chris, Jane and Andy for being such wonderful hosts, great cakes by the way, Thames Riviera Hotel for being so accommodating with the group and their guide dogs and most importantly for all who supported Molly by attending the workshop. There were some wonderful raffle prize giveaways including the Ring Doorbell and Philips Hue starter kit. Let’s hope that there will be loads more to come and I would highly recommend the services of Molly-Jane Watt as a keynote speaker or gadget guru for accessibility, however please do bear in mind she is an independent Charity and cannot survive on freebies.
applewatch, #Apple, #Ring, #ReSound,
Author - Frank Viljoen, Director of MOOHBE a proximity mobile marketing specialist consultant working on a revolutionary digital communication channel for but not exclusive to the Deaf, Hearing and Sight loss community.
I was fortunate to be introduced to local couple Diane and Laurence Armstrong at a Christmas party in 2016.
We quickly struck up conversation about both their's and my charity work.
Diane and Laurence have hosted numerous charity balls over the years and raised thousands and thousands of pounds for both national and local charities.
They were both very interested in the work we do at Molly Watt Trust to support and provide people living with deafblindness both information and access to the assistive technologies capable of both enhancing and enabling them better access to the world we live in, the result of which the Armstrong's chose us as beneficiaries of their ‘2017 Charity Ball.’
I am a local girl, grown up in Maidenhead, educated and supported in Maidenhead from 3 years old until being diagnosed with deafblindness, the happiest times of my life.
Little did I realise how many local people knew me or knew of me and that so many would be at the Ball and supporting the Molly Watt Trust.
Saturday 17th June was the day of the ball which was incredibly well attended and we were totally overwhelmed by the generosity of the many local people who had donated some truly amazing raffle and auction prizes.
I can only describe the evening as utterly amazing.
I have terrible sight, however, I was delighted on arrival it was a hot and sunny evening. I did have to hide in the shade to appreciate the ladies in beautiful dresses and the men dressed so smartly. Scanning the room at the venue, Maidenhead Golf Club, it was tastefully decorated including balloons in the colours of the MWT logo and the room was full.
The evening was full of fun, great food and for me great memories, however that was nothing compared to the incredible generosity of those who attended.
We raised £6203 on the night to add to a very generous donation from local builder Michael Shanly and several other donations after the Ball totalling £8000.
I want to personally thank Diane and Laurence for their hard work, Diane’s amazing organisational skills, their generosity and kindness along with those who helped along the way including Jack Armstrong and my little sister Lily for their photography skills.
I'd also like to thank every single person who attended, from near or far and who donated in any way to make the evening such a huge success.
The funds raised will be going towards funding assistive technology to the Usher Syndrome community, to bringing together many deafblind people isolated by their condition and for us to continue raising awareness of this cruel condition and addressing needs with digital solutions.
Thank you Maidenhead.