A A A Accessibility A A A A
Wednesday, 13 April 2016 16:10

Ready to meet others with Usher Syndrome

I decided I would like to meet some fellow ushers as never met anyone and my sight has been steadily getting worse . I had support worker for blind visit recently and she said about cane and guide dog and l 

was very emotional about this as I have probably put my condition to the side and tried living as "normal" .I was very nervous about coming to Walsall but found it a very welcome event and being the first for me it wasn't too big group of people. Having the speakers made it interesting as you can relate to their experience and in my case Jo Milne was similar as we both have had bilateral cochlear implants :-) Colin was interesting as someone who has been through a lot and Molly as the younger generation showing lots of confidence and researching the technology .

I am glad we stayed over and had more time with these ushers and their partners/families and also their loyal guide dogs as this was what I needed to see although no canes used here. 

It was lovely to meet you Jane and Andrew and thank you for organising the event and for giving me the opportunity to meet other ushers who I hope I will meet up with again .

Many thanks and will wait to hear of dates for future events

Nicky Griggs xx


Wednesday, 13 April 2016 11:17

15th October 2016 In It Together @ Edinburgh

“In it Together Edinburgh 2016”

King’s Manor Best Western Hotel

100 Milton Road


EH15 2NP

Saturday 15 October 2016

2pm - 5pm


We are delighted to announce Gavin Neate will be joining us from 3pm to share his story and details of his innovative assistive technology

Our raffle will include the amazing Ring Video Doorbell more prizes to follow.

We are excited to be holding our 3rd “In it Together” social event for people with Usher/RP, living with it or working with it.

As always it is our intention to bring like minded people together for a casual afternoon with coffee and cakes.

There will be speakers, there will be MWT Christmas cards and a raffle - these things to be confirmed nearer the date.

This is a beautiful hotel with fantastic facilities.

Room prices for those attending are at the reduced rate of £60 B&B per double - contact hotel direct for booking. 

Numbers will be limited so booking early highly recommended.

Please contact us to confirm your place.

Please note there have been no requests for interpreter support.


Recent Blogs

The Colour Palette of Hearing - Reso…

The Colour Palette of Hearing - Resound One

Ok so finally I can write my first Resound One review. On 3 September I was fitted with my new hearing aids.  For me it always takes a good few weeks...


Covid Challenges and Solutions #Doin…

Covid Challenges and Solutions #DoingItAnyway

I was so excited about 2020, it was set to be another full year, lots of exciting projects, lots of learning, lots of educating, lots of travel, a new nephew...


The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...


Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...