A A A Accessibility A A A A
Wednesday, 13 April 2016 16:10

Ready to meet others with Usher Syndrome

I decided I would like to meet some fellow ushers as never met anyone and my sight has been steadily getting worse . I had support worker for blind visit recently and she said about cane and guide dog and l 

was very emotional about this as I have probably put my condition to the side and tried living as "normal" .I was very nervous about coming to Walsall but found it a very welcome event and being the first for me it wasn't too big group of people. Having the speakers made it interesting as you can relate to their experience and in my case Jo Milne was similar as we both have had bilateral cochlear implants :-) Colin was interesting as someone who has been through a lot and Molly as the younger generation showing lots of confidence and researching the technology .

I am glad we stayed over and had more time with these ushers and their partners/families and also their loyal guide dogs as this was what I needed to see although no canes used here. 

It was lovely to meet you Jane and Andrew and thank you for organising the event and for giving me the opportunity to meet other ushers who I hope I will meet up with again .

Many thanks and will wait to hear of dates for future events

Nicky Griggs xx

 

Wednesday, 13 April 2016 11:17

15th October 2016 In It Together @ Edinburgh

“In it Together Edinburgh 2016”

King’s Manor Best Western Hotel

100 Milton Road

Edinburgh

EH15 2NP

Saturday 15 October 2016

2pm - 5pm

 

We are delighted to announce Gavin Neate will be joining us from 3pm to share his story and details of his innovative assistive technology

Our raffle will include the amazing Ring Video Doorbell more prizes to follow.

We are excited to be holding our 3rd “In it Together” social event for people with Usher/RP, living with it or working with it.

As always it is our intention to bring like minded people together for a casual afternoon with coffee and cakes.

There will be speakers, there will be MWT Christmas cards and a raffle - these things to be confirmed nearer the date.

This is a beautiful hotel with fantastic facilities.

Room prices for those attending are at the reduced rate of £60 B&B per double - contact hotel direct for booking. 

Numbers will be limited so booking early highly recommended.

Please contact us to confirm your place.

Please note there have been no requests for interpreter support.

 

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