A A A Accessibility A A A A
Thursday, 23 April 2015 20:00

See Me, Hear Me

Written by  Molly Watt
Rate this item
(10 votes)

The sun would shine we'd go out to play

Ride our bikes or play on swings

We really could do wonderful things

Run and play, just play all day

Now when the sun comes out to play

I must hide my eyes away

The glare is painful it makes my eyes weep

I hide behind dark glasses as if to sleep

My eyes are open but little can I see

Usher Syndrome, Deafblind is me

Hearing is a challenge but hearing aids fab

Seeing more difficult without Unis my lab

Life is different, challenging and tough

It's all about awareness, there isn't enough

My aim is to educate to make people aware

My Usher Syndrome challenges I'm going to share

If you are interested and would like me to inspire

Invite me to talk, go on I dare you to enquire

Read 20201 times

 

Recent Blogs

The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...

Read more...

Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...

Read more...

A Decade of Progress

A Decade of Progress

Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...

Read more...

Ultimately we can all be winners

Ultimately we can all be winners

This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...

Read more...

Virgin Train #Fail

We were truly horrified to hear of Molly's recent expereince at London's Euston Station and it must never happen again:   I travelled from Maidenhead to London Euston to catch a train...

Read more...

Helen diagnosis 'I felt my world fel…

Helen diagnosis 'I felt my world fell apart'

My name is Helen Colson. I’m 29 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely deaf, Ushers Syndrome last year.  It...

Read more...

Olivia's Usher Life - Last few month…

Olivia's Usher Life - Last few months of emotions

Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to...

Read more...

Where did our journey with Usher Syn…

Where did our journey with Usher Syndrome begin?

Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue...

Read more...

The evolution changing Usher Syndrom…

The evolution changing Usher Syndrome

Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed.  It remains a condition without a cure. There are variations in level of deafness, in level of...

Read more...

Whispers in the Dark

Whispers in the Dark

It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant...

Read more...