A A A Accessibility A A A A

Molly Watt

I am 20 years old, I'm a very creative and determined person and the proud owner of Guidedog Unis.  Life is often tough, however, it doesn't stop me doing most of the things others my age enjoy, however having Usher Syndrome does mean the things most take for granted can and are often very challenging.

Since being diagnosed it became more and more clear that few have heard of the condition that has taken my hearing and sight, let alone understand it and there began my quest to raise awareness of Usher Syndrome and to get across the message that the correct support and understanding are key to those of us living with this cruel condition.

Since diagnosis I have used my creativity to make Usher Syndrome Awareness Videos which can be seen on my website, these videos are regularly used by professionals who work with DeafBlind people and as a result of producing these videos I was nominated and won the title of Sense's Young Deafblind Person of the Year in 2010, I was the youngest ever to win that accolade back then and something that spurred me on.

Along with enjoying the usual things in life I am actively involved in charity work, I am an Ambassador for Sense, I've taken part in the Race around the Isle of Wight on board Songline With Sir Alan Rudge and his crew fundraising for RP Fighting Blindness and of course I spearhead this charity.

I've had the huge pleasure of doing presentations at The House of Commons and also at Harvard Medical School raising awareness of Usher Syndrome and Usher issues and will continue to do so as and when I can whilst studying at University.

 

"Usher Syndrome is just a part of me, it does not define me"

Read 5795 times Last modified on Friday, 10 October 2014 11:50

 

Recent Blogs

The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...

Read more...

Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...

Read more...

A Decade of Progress

A Decade of Progress

Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...

Read more...

Ultimately we can all be winners

Ultimately we can all be winners

This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...

Read more...