A A A Accessibility A A A A

Molly Watt

I am 20 years old, I'm a very creative and determined person and the proud owner of Guidedog Unis.  Life is often tough, however, it doesn't stop me doing most of the things others my age enjoy, however having Usher Syndrome does mean the things most take for granted can and are often very challenging.

Since being diagnosed it became more and more clear that few have heard of the condition that has taken my hearing and sight, let alone understand it and there began my quest to raise awareness of Usher Syndrome and to get across the message that the correct support and understanding are key to those of us living with this cruel condition.

Since diagnosis I have used my creativity to make Usher Syndrome Awareness Videos which can be seen on my website, these videos are regularly used by professionals who work with DeafBlind people and as a result of producing these videos I was nominated and won the title of Sense's Young Deafblind Person of the Year in 2010, I was the youngest ever to win that accolade back then and something that spurred me on.

Along with enjoying the usual things in life I am actively involved in charity work, I am an Ambassador for Sense, I've taken part in the Race around the Isle of Wight on board Songline With Sir Alan Rudge and his crew fundraising for RP Fighting Blindness and of course I spearhead this charity.

I've had the huge pleasure of doing presentations at The House of Commons and also at Harvard Medical School raising awareness of Usher Syndrome and Usher issues and will continue to do so as and when I can whilst studying at University.

 

"Usher Syndrome is just a part of me, it does not define me"

Read 6249 times Last modified on Friday, 10 October 2014 11:50

 

Recent Blogs

Lots of Joy with my Resound Linx Qua…

Lots of Joy with my Resound Linx Quattro & Multi Mic in school /education

Hello everyone, hope you are all doing okay during these unusual times. Some of you may know me and some not, so let me introduce myself. My name is Olivia Morton...

Read more...

My 1st year with Resound Linx Quattr…

My 1st year with Resound Linx Quattro - WOW!

    I was chosen as part of a project run by Molly Watt Trust with the support and collaboration of GN Hearing and Sarah Vokes of Correct hearing in Nottingham.  In February...

Read more...

The Importance of Best Access to Sou…

The Importance of Best Access to Sound for those living with Usher Syndrome

Hi folks I hope you are all well and keeping your spirits up. I thought I’d write an update on my experience wearing Linx Quattro hearing aids from Gn Resound for...

Read more...

The Colour Palette of Hearing - Reso…

The Colour Palette of Hearing - Resound One

Ok so finally I can write my first Resound One review. On 3 September I was fitted with my new hearing aids.  For me it always takes a good few weeks...

Read more...

Covid Challenges and Solutions #Doin…

Covid Challenges and Solutions #DoingItAnyway

I was so excited about 2020, it was set to be another full year, lots of exciting projects, lots of learning, lots of educating, lots of travel, a new nephew...

Read more...

The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...

Read more...