I am 20 years old, I'm a very creative and determined person and the proud owner of Guidedog Unis. Life is often tough, however, it doesn't stop me doing most of the things others my age enjoy, however having Usher Syndrome does mean the things most take for granted can and are often very challenging.
Since being diagnosed it became more and more clear that few have heard of the condition that has taken my hearing and sight, let alone understand it and there began my quest to raise awareness of Usher Syndrome and to get across the message that the correct support and understanding are key to those of us living with this cruel condition.
Since diagnosis I have used my creativity to make Usher Syndrome Awareness Videos which can be seen on my website, these videos are regularly used by professionals who work with DeafBlind people and as a result of producing these videos I was nominated and won the title of Sense's Young Deafblind Person of the Year in 2010, I was the youngest ever to win that accolade back then and something that spurred me on.
Along with enjoying the usual things in life I am actively involved in charity work, I am an Ambassador for Sense, I've taken part in the Race around the Isle of Wight on board Songline With Sir Alan Rudge and his crew fundraising for RP Fighting Blindness and of course I spearhead this charity.
I've had the huge pleasure of doing presentations at The House of Commons and also at Harvard Medical School raising awareness of Usher Syndrome and Usher issues and will continue to do so as and when I can whilst studying at University.
"Usher Syndrome is just a part of me, it does not define me"