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Dr Mariya Moosajee is a Consultant Ophthalmologist at Moorfields Eye Hospital and Great Ormond Street Hospital for Children in London.…
We were delighted to be chosen to be Maidenhead’s Thames Riviera Hotel charity of the year.  Early in January we…
Thursday, 13 July 2017 12:44

September's SkyDive

We are delighted to invite you to join us on Sunday 3rd September 2017 at http://skydivesibson.co.uk to take part in…
We are celebrating 3rd Usher Syndrome Day with two day’s of fun and learning Friday 15 & 16 September 2017 …
Wednesday, 13 April 2016 11:17

15th October 2016 In It Together @ Edinburgh

“In it Together Edinburgh 2016” King’s Manor Best Western Hotel 100 Milton Road Edinburgh EH15 2NP Saturday 15 October 2016…
Saturday 2nd April 2016 The Saddler SuiteBest WesternBarons Court HotelWalsall WoodWS9 9AH 2pm to 5pm We are pleased to announce…

 

Recent Blogs

The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...

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Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...

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A Decade of Progress

A Decade of Progress

Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...

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Ultimately we can all be winners

Ultimately we can all be winners

This year saw me nominated for three awards, Young Digital Leader for Digital Leaders for the second time (Too old for that one again) Positive Role Model for Disability, National...

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Virgin Train #Fail

We were truly horrified to hear of Molly's recent expereince at London's Euston Station and it must never happen again:   I travelled from Maidenhead to London Euston to catch a train...

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Helen diagnosis 'I felt my world fel…

Helen diagnosis 'I felt my world fell apart'

My name is Helen Colson. I’m 29 years old & live in Southport, Merseyside. I was diagnosed with Retinitis Pigmentosa and as I am moderate-severely deaf, Ushers Syndrome last year.  It...

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Olivia's Usher Life - Last few month…

Olivia's Usher Life - Last few months of emotions

Hello Everyone! Would like to wish you all happy deaf blindness week! I’m so sorry that I haven’t posted in it feels like ages! But I’ve got soooo much to...

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Where did our journey with Usher Syn…

Where did our journey with Usher Syndrome begin?

Where does our story begin..... Alice (now 16) was born profoundly deaf. In Oct 17 at a routine eye test (Alice has always worn glasses) they picked up an issue...

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The evolution changing Usher Syndrom…

The evolution changing Usher Syndrome

Usher Syndrome is a strange thing, strangely it is evolving even though it hasn’t changed.  It remains a condition without a cure. There are variations in level of deafness, in level of...

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Whispers in the Dark

Whispers in the Dark

It’s never been easy. Having to scan the floor in front of you when walking down the street. Having to pre-plan the route to the nearest toilet in a restaurant...

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