A A A Accessibility A A A A

Our aim is to raise awareness of the
condition and its many challenges

Funding mainstream
assistive technology

To bring together those living with
the condition, to share experiences

To ease isolation

To recognise and raise awareness
of enabling assistive technologies

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Molly Watt Trust

The Molly Watt Trust was set up to raise awareness of all things related to Usher Syndrome, a rare genetic condition discovered by Scottish Ophthalmologist Charles Usher back in 1914 it causes both Deafness and Retinitus Pigmentosa (a form of blindness).

Usher Syndrome is a progressive condition and to date there is no cure. Usher Syndrome affects both hearing and sight, for some it affects balance.  This condition leads to challenges and differences in communication, mobility, often causing anxiety often resulting in isolation and depression.

Many use hearing aids or cochlear implants to access sound and are able to communicate with speech, however, as sight deteriorates it appears that so too does hearing because the ability to use visual clues like lip reading, facial feature and body language decrease.

Some communicate with sign language or tactile signing as sight deteriorates. Many maintain a small amount of central vision which remains good but makes life incredibly challenging.

Assistive technologies provide digital access to the world. Computers and tablets with the relevant software enable accessibility, many have built in accessibility features, magnifiers, screen readers, speech to text software, large text, tactile aids, Bradley timepiece and Applewatch.  Ereaders.

The main focus and aims of Molly Watt Trust:

To raise awareness of Usher Syndrome

  1. Organising meet ups / social events
  2. Provide small group workshops
  3. Offer mentoring service
  4. Provide Keynote awareness presentations

Usher Syndrome Enablement

  1. To research and recognise assistive technologies
  2. Provide small group workshops using assistive tech
  3. To run fundraising projects and case studies

Molly Watt Trust recognises the many challenges of those living with Usher Syndrome and as a result very active on social media, sharing information and experiences whilst actively fundraising for small items of assistive tech/ equipment to enhance life living with Usher Syndrome.

Details of the condition are general each person with the condition is unique.

Usher Syndrome is a condition only truly understood by those living with it and it is these people who can educate us the most.

"My world might be tiny but my determination spreads the world"

Molly-Jane Watt

 

Recent Blogs

The Reality of Usher Syndrome

The Reality of Usher Syndrome

Well folks today so far for me has been a real rollercoaster of emotions. To be honest I’m usually very straight forward and generally a get up and go sort of...

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Smart Hearing the Catalyst to my Acc…

Smart Hearing the Catalyst to my Accessibility Toolkit

Having Usher Syndrome is a rollercoaster of emotions as your vision ebbs away. Going blind is all consuming so much so we almost lose sight of the real importance of access...

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A Decade of Progress

A Decade of Progress

Well it’s the year of 2020 everyone!  It certainly has been a time of reflection for me, as a result I wanted to share my last decade in a blog that...

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